Autism tips from autistic individuals

Posted by: manarm — over 2 years ago (29 comments)

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We would like to compile a list of autism tips provided to us by individuals on the autistic spectrum. Please add to this discussion thread. We hope to collect 200 tips for 2017. If the tip is from a child please let us know if you are providing the tip on their behalf. Thank you.

Comments

Posted by: manarm — over 1 year ago

(About meltdowns) I feel trapped. I have a weird tension in my head or my arms I want to get out. Everything around me suddenly feels extremely real like I’ve just come out of the water, I feel all sorts of emotions all at once and I want to run away from them all. I lose sight of what is socially appropriate and start to say things I either don’t mean or something I’ve wanted to say deep down. Whenever that happens I end up hurting someone or confusing everyone. - Chi C

Posted by: manarm — almost 2 years ago

It’s hard to filter when there are lots of other sounds going on, eg ‘background noise’ as well as the conversation I’m meant to be a part of. I feel like I end up processing everything … it’s very stressful, irritating and overwhelming. – Alis Rowe

Posted by: manarm — almost 2 years ago

I like teachers that can explain concepts really well so I do not have to reread or ask too many questions during a lecture. Shorter sentences are easier to understand than long ones. But, if I do need to ask questions, please don’t get annoyed or upset if I ask “too many” questions. Getting my questions answered does a lot to lessen my anxiety. - Ethan Hirschberg

Posted by: manarm — about 2 years ago

My mind doesn’t stop; it spins and shifts in different directions creating webs of patterns, linked by varying hues. - Michael Bowring

Posted by: manarm — about 2 years ago

We've got to limit the screentime ... What I'm seeing now is the kids who learnt how to work before they graduated from highschool, they're doing well - I'm talking about fully verbal kids - and the ones who haven't learnt how to work, they are getting addicted to video games" - Temple Grandin

Posted by: manarm — about 2 years ago

I don't really understand why it's considered normal to stare at someone's eyeballs - John Elder Robison

Posted by: manarm — about 2 years ago

I have a very uneven profile of strengths and weaknesses, where often my strengths mask my very real difficulties - Ros Blackburn

Posted by: manarm — over 2 years ago

Routine is a pivotal part of my daily life and any deviation, however slight, can cause great discomfort to me. - Nathan Cornfield

Posted by: manarm — over 2 years ago

Autistic people live in a keenly sensory world. Their self-stimulatory behaviours are all conencted with senses. - Jasmine Lee O'Neill 

Posted by: manarm — over 2 years ago

Playing the piano makes me very happy. Playing Beethoven is like your feelings - all of them - exploding. - Mikey Allcock 

Posted by: manarm — over 2 years ago

I am a very visual thinker. I think in picutres not words. You might have noticed that I don't have much inflection in my voice. - Alix Generous

Posted by: manarm — over 2 years ago

I cannot speak. For whatever reason God has intended for me to be mute. Many people might believe that I cannot think, but despite their thinking I can. What's more is that I listen. - Neal Katz

Posted by: manarm — over 2 years ago

One reason I've done as well as I have is early intervention - I was 'got at' very young - Ros Blackburn

Posted by: manarm — over 2 years ago

I have an extremely visual mind, like a third eye in my head, and doctors have said I have some of the highest visual learning skills they've ever seen. - Rosie King

Posted by: manarm — over 2 years ago

No matter how hard I try to learn from other people or copy what others are doing, I can't quite get it right. It's like living in a foreign country and not knowing the language. - Rosie King

Posted by: manarm — over 2 years ago

The thing is I don't think in a language, and animals don't think in a language. It's sensory based thinking, thinking in pictures, thinking in smells, thinking in touches. It's putting these sensory based memories into categories. - Temple Grandin

Posted by: manarm — over 2 years ago

If you got rid of all the autism genetics, you wouldn't have science or art. All you would have is a bunch of social 'yak yaks' - Temple Grandin

Posted by: manarm — over 2 years ago

My fear is that if I don’t mask, push through & show how capable I am, I won’t be offered opportunities in the future or be valued the same. - Emily Swiatek

Posted by: manarm — over 2 years ago

Autistic people are individuals. We are not all maths geniuses, we don't all like trains. I am hopeless with technology and much prefer paitning. There is no 'typical Autistic.' But I think we probably all like being respected and validated. - Jeanette Purkis

Posted by: manarm — over 2 years ago

If there were no rules specified, for example: only cross the road at a crossing, then I invented my own rules. - Wenn Lawson

Posted by: manarm — over 2 years ago

Avoiding eye contact is one of the things I find myself automatically doing to minimize the quantity of incoming sensory information. - Judy Endow

Posted by: manarm — over 2 years ago

We cry, we scream, we hit out and break things. But still, we don't want you to give up on us. Please, keep battling alongside us. - Naoki Higashida

Posted by: manarm — over 2 years ago

Please don't judge us from the outside only. I don't know why we can't talk properly. But it's not that we won't talk - it's that we can't talk and we're suffering because of it. - Naoki Higashida

Posted by: manarm — over 2 years ago

I know we're not supposed to judge people by their appearances. But people tend to make exeptions for autistic people. I know this because whenever you tell me I "don't look autistic", what you're saying is I'm not matching your expectations of what an autistic person is supposed to look like - Chris Bonnello

Posted by: manarm — over 2 years ago

Acceptance is important for any parent, because every kid - no every person - is wired imperfectly - Ron Fournier

Posted by: manarm — over 2 years ago

I might hit developmental and societal milestones in a different order than my peers, but I am able to accomplish these small victories on my own time. - Haley Moss

Posted by: manarm — over 2 years ago

Autism can't define me. I define autism. - Kerry Magro

Posted by: manarm — over 2 years ago

If you've met one individual with autism, you've met one individual with autism - Stephen M Shore

Posted by: manarm — over 2 years ago

Do not use phrases that are 'gibberish' - posted on Twitter by Caffeinated Otter on 30 December 2016